Wednesday, April 11, 2007

eans dream

my six year old son ean came into my bedroom one morning to shnuzzle up to my one good arm, and woke me up asking if i wanted to hear about his dream. having been victimized by hundreds of 25 minute accounts of imagination in the past i was still instantly eager to drink in the heart of my child. when he shared the dream with me i was awed by the awareness that God had spoken to the family through a dream to my youngest child. here is the communication as i best recall of ean sharing his dream with me
ean. daddy i had a dream last night
dad, tell me what it was,
ean, i dreamed that we moved to live by the sea because of your thing (ean points to my armpit where the cancer was removed)
dad, do you mean the ocean?
ean, (sernly) NO! the sea!
dad, okay alright!
ean, we lived by the sea because of your thing, and you got in the water every day for ten minutes because of your thing, and so one time i sneaked into the water so i could be with you. the water wasn't very deep ... it was actually just perfect for me it was to right here (he points to his chest) but you couldn't see the bottom. you started to get out of the water so i decided i would go swimming. just before i could start swimming my foot bumped into something, so i reached down to see what it was. when i had grabbed it and pulled it up, i had a handful of gold. i went to show it to you, but i lost it, so i went to look for it on the bottom. then i saw that the whole ground was full of gold.
...
...
...
dad, HOLY CRUD! ... ean that dream is amazing, i think it was more than just a dream


so ... this was eans dream, and i believe that it is a very real message to my family. i don't know exactly what it means, but i am listening awfully close for any translation of it.

Tuesday, April 10, 2007

i got the cancers!

hello friends,

here is a snapshot of what has occurred and i will post updates as new information is available.

December 2007 first dermatologist examined lump on shoulder, tried to remove it and gave up after 15 minutes of cutting on it. referred me to a surgeon.

January 9, 2007 surgeon removed lump completely, but did not understand pathology report indicating "malignant peripheral nerve sheath tumor"

February 21 after numerous attempts to receive clarification from surgeon and obtaining none, we were referred to see an oncologist. Dr Castillo informed me that Malignant peripheral nerve sheath tumor is actually a very rare and specific type of cancer. it can be an aggressive cancer and most likely i will develop more tumors throughout my lifetime, serious risk is when a tumor spreads to the lymph system or even more serious would be a tumor growing near a vital organ especially a lung.

March 2, 2007, ct scan performed, and follow up appointment with Dr. Castillo made. Also on this date, Dr. Declan Fleming called, prompted by a request from a Texas friend Elizabeth Byrd. Dr. Fleming is a surgical oncologist, specializing in surgical cancer removal, and he offered to help in any way he could.

March 7, 2007 Dr. Castillo informed us of ct scan results. there was a large mass in my right armpit and a small (fingertip size) mass located in my left upper torso area. surgical removal and biopsy was recommended for the large mass and the small mass is too small to pursue aggressively, Dr. Castillo recommends just keeping an eye on it.

March 28, 2007 surgical removal of armpit mass reveals 5 cancerous tumors in my lymph system. Having MPNST in the lymph significantly increases the likelihood of microscopic spread of the disease, it seems like news is getting pretty bad now!

April 4, Dr. Castillo clarifies that the small mass located in left torso is actually located in my left lung, and MPNST is rare enough that we should seek specialized care, he sent a referral to the md Anderson hospital located in Houston.