rawr! the eternal battle dealing with bureaucracy just keeps on going! My oncologist tried to schedule a ct scan last week, but was informed that he is no longer authorized to refer me for treatments and scans. i used up over half of my cell plans minutes trying to figure out what i had to do in order to get the scan done. i was told that i had to have a dr appointment at one of the dirty ghetto clinics in order to establish coverage. the next available appointment is september 12. the coverage that i have been provided expires on august 10, and will not be renewed unless my homes are sold. after waiting on hold and sitting in several offices for hours, i snapped and decided i was gong to just go make a scene at the state capitol building. i figured "what the heck, worse case scenario, i'll get myself arrested and they probably can't deny health services to inmates." i have never been to the capitol building, so i just showed up in the lobby and started asking random people what they would do. i was eventually sent to my state senators office where i found an individual whose position is constituent services. this delightful woman spent an hour and a half making calls and turning the screws until she got in touch with the right guy at the right time. we were promised a return call that same day, so i left and awaited his call. by the time he called i already had an appointment for the next day at the dirty clinic in the bad part of town. i went to the clinic and was helped by a handful of very helpful concerned individuals, however, they apparently do not have the same access to the hospital scheduling and it may take several weeks before i can get the scan done, and that is assuming that the family dr i saw agrees with my oncologist that the scans are necessary. it sure seems ridiculous to have a family clinic dr oversee the recommendations of a oncology specialist with 15 years experience treating cancer, especially since my oncologist was able to get my last ct scan scheduled in 2 days. i guess it won't serve any purpose to try to find reasonable rational thought in the bureaucracy.
i think i am close to really being at the end of my rope, and i mean that in a good "tyler durden" kind of way (reference fight club). we are actively laying down all of our previous hopes dreams desires wants assumptions and expectations, and looking at life with some pretty brutally honest admissions. it's been really great to strip down to the bare essentials and allow new matured (hopefully) mindsights to govern our desires.
again, i cannot thank all of the genereous friends who have donated time, money, love and creativity to my family. there are several new fundraising efforts underway, my beauty school is doing a cut-a-thon in august and my friends band the black angels are planning a benefit show in september. if anyone knows of a local (tx) band that would want to play at the cut-a-thon, let me know.
love you all!
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Wednesday, July 11, 2007
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4 comments:
Hey there Isaac. We just wanted you and Johnna and the kids to know that you guys have been in our thoughts and prayers. We think about you guys all the time. We love you and will keep praying.
Steve and Heidi
Dear Isaac and Johnna, your folks have kept us updated through our homegroup and the online church prayer chain.
We consider you often and pray for God's Best, which I am sure He will provide. You probably know about our granddaughter Savannah's battle with Leukemia and that God has brought her through to great health. I believe it was the intense and sustained prayer from The Body of Christ that did it. She had people from all over the country praying for her. Our prayer is that God will enlist the Body from far and wide to support you and your family in everyway possible.
Keep on Keepin' on brother.
Love, Dan and Sue DuCharme
dear carebear,
can you post some info on the clinic that you are going to be going to in tijuana ?
lots of people want to know more about it and i think you will get more financial support if there is more rather then less info.
lambert
When is the cut-athon? Do you have a band yet?
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